PRIDE Study Aims to Create Database after Studying Health Issues of LGBT Community

PRIDE Study Aims to Create Database after Studying Health Issues of LGBT Community

In a bid to gather greater insight into the health issues of the lesbian, gay, bisexual, transgender and queer (LGBTQ) category of individuals, researchers from the University of California, San Francisco have launched a landmark study.

For the study, almost 600 participants have pre-enrolled and the researchers are expecting the numbers to increase, owing to the online platform created by them. The researchers have devised an iPhone application called ResearchKit, centered on collecting information on their health. Through the responses received, the researchers aim to progress towards phase II of the study, which includes framing specific research questions to address specific disease risks, outcomes and resiliencies in this population.

The longitudinal study has been titled the Population Research in Identity and Disparities for Equality or ‘PRIDE’ study and would collect information from iPhone and Internet users in the United States, to build the largest database yet of the physical, mental and social issues of the LGBTQ community. The internet users can participate through a website called www.pridestudy.org.

The study comprises of two parts. The first is the ‘community listening’ phase, where the team will gather and understand basic demographic and census data to understand the LGBTQ community’s health questions and priorities. Following this, questions will be framed and answered in a different study, which the researchers expect to begin in approximately six to nine months.

When asked, Juno Obedin-Maliver, MD, MPH, also a research fellow in the School of Medicine, said, “There’s a real lack of evidence-based information on community health. The current landscape for LGBTQ health is less of a map and more of a signpost in the desert. We aim to create that map”.

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